I chose to start advocating for better devices for the pulmonary fibrosis community simply because the need is there.
Seriously. There are over 200,000 people living with Idiopathic Pulmonary Fibrosis just in the United States and I have no idea how many there are world wide. Folks with moderate to advanced PF have very specific supplemental oxygen needs, and these needs are not being addressed.
Blood oxygen saturation can change rapidly with any kind of exertion, a device that continuously monitors SpO2 and will alarm at a minimum safe level. Speaking of rapidly changing sats, we really could use a device that will allow remote adjusting of supplemental oxygen flow while using a home oxygen concentrater.
If you are interested, you can read more about my ideas for devices to help the PF community here.
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