A simple question with more than one answer.
- My favorite, and most effective platform for interacting with health care providers, medical device design teams, and other ePatients is Twitter. Twitter seems the best platform for quickly sharing important information, ideas, and medical advances. Twitter chats and conversations reach a wide variety of people and organizations, and can be easily followed with a #.
- To promote "A Primal Transplant" outside of the ePatient/medical community, Facebook seems to be the best choice.
- The purpose of "A Primal Transplant" is to be a place where people affected by Idiopathic Pulmonary Fibrosis or considering a lung transplant, can uplifting and accurate information about these issues from someone who's "been there, done that". Social media platforms are great for getting the word out quickly, but Blogger is my favorite for publicly documenting my post-transplant journey and hopefully helping those who are on a similar path.
I do believe that the very best 'platform' for getting your voice heard and spreading awareness will always be face-to-face. Looking someone in the eye, and sharing a moment with them, will leave a much deeper impression than any Tweet or blog post.
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