Wednesday, March 1, 2017

Healthline - Tips from the IPF Community: What We Want You to Know

Idiopathic Pulmonary Fibrosis (IPF) is growing thanks to support of foundations like the Pulmonary Fibrosis Foundation, patient groups such as Inspire & PatientsLikeMe, and the 'Big Pharma' companies Genentech & Boehringer-Ingelheim.  I've heard a PSA on the radio and am seeing more and more articles about our disease. This is all good, and I am very happy to be seeing that we are getting this exposure. Exposure = awareness and awareness = funding and interest in research. Awareness also means the possibility of earlier diagnosis for our community.

I especially like when our voices are the focus of an article. Healthline has published one such article.

When you tell someone that you have idiopathic pulmonary fibrosis (IPF), chances are they ask, “What’s that?” Because while IPF greatly impacts you and your lifestyle, the disease only affects about 100,000 people total in the United States. 
And explaining the disease and its symptoms isn’t exactly easy either. That’s why we reached out to IPF patients to get a sense of what they’re going through and how they’re managing it all today. Read their inspiring stories here.
Head on over and read some thoughts from folks who have walked the walk.

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