Sunday, July 31, 2016

Scammers are Scum

Folks with rare, progressive, terminal diseases are often desperate to find some glimmer of hope for a cure.  I looked to clinical drug trials for hope, and lifestyle changes to improve my quality of life.  My IPF had progressed too far to be accepted into most trials, and I was not the perfect patient for the one trial close by, in Oklahoma, that would take people with more advanced disease. My final option was the lung transplant, and I am very fortunate to have been placed on the list and offered new lungs.

There is a seedy underbelly of humanity (and I do use that term loosely here) that will seek to profit off of desperation. These people and organizations are scum of the earth. You will find them posting in internet communities that are dedicated to supporting the patients and caregivers of disease.  They are also easily found when searching for information on rare diseases.  If they happen to get ahold of a patients email address, they fill the in-box with seductive promises of health and well being.  These miracle cures can cost hundreds, even thousands, of dollars a month. This is money that most cannot afford to be spending, especially spending on false hope. Often the patient can offset the cost of their 'treatment' by referring others to the scammer. Kind of like multi-level marketing for snake oil.

I recently had one of these scammers post a comment here on the blog. I will not be party to promoting disinformation like that.  I did allow this one comment to stay as I wanted to address the issue.  All future comments like this will be deleted without comment or explanation.

Here is the comment and my response:
Joan DavidsJuly 30, 2016 at 7:10 PM(MUST READ: HOW I GOT CURED FROM PULMONARY FIBROSIS)
I was diagnosed of Pulonary fibrosis in March 2014, my doctor told me it has no permanent cure, i was given medication to ease the situation, this affected me so badly as i constantly go short of breath, this continued till a friend of mine Karen told me about Ejiro Herbal Clinic were she bought herbal medicine that totally cured her mother of pulmonary firbosis, I contacted this herbal clinic via their email and purchasd the pulomnary fibrosis herbal remedy, i received the herbal medicine within 7 days and when i started usage my lungs gradually got better until i even forgot i had pulmonary fibrosis, i went back to my familly doctor to test for idiopathic pulmonary fibrosis my doctor confirmed my lungs tissue were 98% repaired. Contact this herbal clinic via their email - deleted
 JRJuly 30, 2016 at 8:57 PMJoan, I have never understood the depravity of individuals who prey upon people with terminal illnesses. Your miricle clinic supposedly cures everything from ALS to COPD to emphysema to Parkinson's and now IPF. During my tenure as an IPF patient I was inundated by scum like you who sought to profit off my presumed desperation. I have seen fiends and acquaintances spend money they could not afford on the false hope provided by reprobates such as yourself. They died taking these snake oils, and left their families worse off for it.
I really hope there is a hell, one with a special place for people like you.
Don't bother replying, or commenting on other threads. Comments promoting snake oils will be deleted w/o comment from now on
I am a big fan of people making money.  Heck, I like making money when I can and Lord knows I could really use a bit more of it. But people like Joan here don't just disgust me, they really piss me off.  These are much worse that the Nigerian scammers who prey upon an individuals greed, they go after the hopeless.

Just like with the Nigerian scam emails, there are hints in the comments and emails that this comment is just meant to swindle money from the sick.  I really don't want to point out the obvious as it may help scammers in the future, but if you know your disease, you can find the errors in the message.  It is very obvious that this "Joan" has not been seen for pulmonary fibrosis.

No, a Japanese silkworm enzyme or a Himalayan fungus is not going to cure your fibrosis. No, the drug companies are not suppressing a natural cure so they can sell their high dollar medications.  Before putting your family into debt searching for the miracle cure, remember that quackery is alive and well on the internet. Do your due diligence and do background checks on the treatments offered.

There are quite a few very interesting clinical trials recruiting IPF patients that are worth looking into. One is a Study of Autologous Mesenchymal Stem Cells to Treat Idiopathic Pulmonary Fibrosis. This is not the same as the Stem Cell clinics that seem to be popping up all over the place. I would approach those with a great deal of caution.

Don't get me wrong.  There are supplements and lifestyle changes that can improve quality of life for many people. The difference is these are not going to empty your bank account and you don't need to get them from a special lab or clinic.

We have a long way to go in improving the diagnosing and treatment of Idiopathic Pulmonary Fibrosis and clinical trials really are our best hope for the future of treatment.  Right now we have two treatments that slow the progression of disease for many people. Please, look into these before sending your money off to some grifter who is just trying to separate you from your money.

25 comments:

  1. Thanks John for this post. Dt Mapipa on his website claims that beside herbal cure he can also cast spell, bring back husband and help win lotto. That's the red flag right there.

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    1. yes i have read this, and i was really chocked. I wrote to him and he told me that he can cure my best friend 100% FORM ipf for 360 us dollars.

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  2. Thanks for your input, I totally agree with you.

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    1. Thanks Tony, I appreciate you taking the time to read and comment.

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    2. Thanks guys for the info. I was taken for $210.00 by the Herbal Clinic in South Africa.
      A scam!

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    3. To whom it may concern . I was scammed also. I was looking for a Herbalist to cure my COPD And Emphysema so i found one in South Africa. It cost me 325.00 and then i had to pay another 500.00$ to have it shipped here in 6days.But they don't tell you that. I guess you just assume the 325.00 was for shipping also. So it leaves Johannesburg and goes to another country so before it goes to the UNITED STATES IT get stuck th togo batch fee. I was going to cost me another 800.00$ . Really~!! WTF. Nope not going to happen. You can stick it . I dont want it. I lost out on this. Live and learn. And still texts me all day long.
      ;

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  3. And they go around leaving spam on other people's website blogs too!

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    1. You'd be surprised how large a scamspam magnet this post is.

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  4. You indicated toward the end that there are two treatments that slow the progression of IPF in many people. What are they?

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    1. Pirfenidone (Esbriet) and nintedanib (Ofev) were approved to treat IPF in the United States in 2014.

      http://pulmccm.org/main/2014/interstitial-lung-disease-review/fda-approves-pirfenidone-esbriet-nintedanib-ofev-ipf/

      There are quite a few promising clinical trials available for folks to enroll in pretty much all over the world. Things really are getting exciting on the research front.

      https://clinicaltrials.gov/ct2/results?term=ipf&recr=Open

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  5. Are there actually any dr's that can cure HPV or herpe? Or all these people are just scam? If there is can somebody please post their contact info. Thank you

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  6. Hi John thank you for the post I was also taken by Dr Mapipa 120.-
    ( probably not a real Dr photo looks like a woman and they tried to call me and was a man) and was checking where to report, like with W.U. they have a ph number listed I saw; we all need to speak up about this FRAUD. Thank you !

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    1. Sorry just posted under wrong name

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  7. http://cybercrime.org.za/reporting
    Several resources are available to handle the issues that arise online and allows for anonymous and confidential reporting.

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  8. I was not really having a problem breathing at first. My throat was burning; I thought I had strep throat. I had pain in my neck, and there was swelling around my collar bone. The first doctor I went to said he did not know why there was swelling. He gave me antibiotics and told me that if the swelling was not better to come back in two weeks. I went back in two weeks and he said he did not know what was wrong. Since I do not have insurance, I went to a hospital emergency room, and they said I have COPD.The disease does not improve. My "good days" are far and few these days. My dad and his dad died from this. I am only writing this to inform others that nothing was really working to help my condition.I started on COPD herbal formula i ordered from Health Herbal Clinic,i read reviews from other previous patients who used the herbal formula, my symptoms totally declined over a 5 weeks use of the COPD natural herbal formula. i am now doing very well, my lungs are totally repaired!! Visit there website www. healthherbalclinic. net

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  9. Dear Friends
    I am suffering from MOTOR NEURON DISEASE and got enquiry from HEALTH HERBAL CLINIC ie healthherbalclinic.net that they will send medicine for two wekk worth 322 dollar and it will be 100% cure within 8 weeks.
    please let me know abouth this is in JOHNSBURG ,SOUTH AFRICA

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    Replies
    1. Hi I'm Harmony William From USA.... i saw your post about MND Herb Cure Inquiry....there is a great Man from Africa who has done great miracle for people he also cured me cure from Copd...and i have been seeing a lot of people saying good about his herbal remedy for MND/ALS CURE... i so much believe in his herbs...his cure is also 100% sure....why don't you give him a try? he has pure herbs to all manners of sickness below is his I.D Drsuccessfulcuringhome@gmail.com I believe he can also help you okay for more info you can talk to me on my email Address harmonywilliam100@gmail.com
      Thanks.

      Delete
    2. My throat was burning; I thought I had strep throat. I had pain in my neck, and there was swelling around my collar bone. The first doctor I went to said he did not know why there was swelling. He gave me antibiotics and told me that if the swelling was not better to come back in two weeks. I went back in two weeks and he said he did not know what was wrong. Since I do not have insurance, I went to a hospital emergency room, and they said I have COPD.The disease does not improve. My "good days" are far and few these days. My dad and his dad died from this. I am only writing this to inform others that nothing was really working to help my condition.I started on COPD herbal formula i ordered from Health Herbal Clinic,i read reviews from other previous patients who used the herbal formula, my symptoms totally declined over a 5 weeks use of the COPD natural herbal formula. i am now doing very well, my lungs are totally repaired!! Visit there website www. healthherbalclinic. net or email Info@ healthherbalclinic. net

      Delete
  10. My throat was burning; I thought I had strep throat. I had pain in my neck, and there was swelling around my collar bone. The first doctor I went to said he did not know why there was swelling. He gave me antibiotics and told me that if the swelling was not better to come back in two weeks. I went back in two weeks and he said he did not know what was wrong. Since I do not have insurance, I went to a hospital emergency room, and they said I have COPD.The disease does not improve. My "good days" are far and few these days. My dad and his dad died from this. I am only writing this to inform others that nothing was really working to help my condition.I started on COPD herbal formula i ordered from Health Herbal Clinic,i read reviews from other previous patients who used the herbal formula, my symptoms totally declined over a 5 weeks use of the COPD natural herbal formula. i am now doing very well, my lungs are totally repaired!! Visit there website www. healthherbalclinic. net or email Info@ healthherbalclinic. net

    ReplyDelete
  11. I ordered and paid for the COPD herbal formula 3 days ago and now i can not get hold of them. They do not answer their cellphone and e mails.I also have not received the formula as promised. It looks like a scam to me.
    Chris Liebenberg

    ReplyDelete
  12. I was a victim of the worsted virus and I got it from cheating on my husband. It was a payback, but a week later I was told by a friend that the person who I cheated with had virus and did not tell me. I was so stupid by using condom for only the first rank, second without, I taught since he was an old friend, he was trustworthy. But I was wrong. I cried and cried. Two days later, I got a phone call from my close friend who I informed about it and she told me about Dr. Sambola who is known by another friend, that he can help me. I did not let my husband know what I was going through. I message him on his email address: drsambolaose@gmail.com and I tell him my story and he replied me immediately saying I should be calm and told me he can treat me. I was still doubting, he sent me video of his patient and some email address which I confirmed he was real, I give him a tried, he sent his herbal medicine to me through DHL, and I also got my healing, I am so happy now that I was tested negative by nine different hospitals. If you have any problem or you are also infected with any infections/diseases or virus, like HIV, HEPATITIS B, PHV, DICK ENLARGEMENT, POWER FOR PASTORS, GONORREH, SKIN INFECTION, CANCER, DIABETES, Etc, EVEN GETTING YOUR EX-BOY/GIRL FRIEND, WIFE, HUSBAND BACK, OR RESTORATION OF DIVORCE AND MONEY RITUALS. Contact him on: drsambolaose@gmail.com call / whatsapp him: +2348034453159 or +2348147017594 for advice and herpes. Website: http://newyork.chaosads.com/item/425303/ http://london.chaosads.co.uk/item/106575/

    ReplyDelete
  13. Hello everybody ,am stay ce please this testimony is true life story ,is real ,am a very honest woman ,i can never post false testimony on social media ,so let me go straight to the point .i was diagnosed with HPV/WART for two years,living a life of fear for two good years .until one day i saw a post about a good herbalist in Africa curing people from a deadly disease,such herpes,papillomavirus,STD,hepatitis,Als,cancer,copd,with his herbal medicine and he is also a spell caster, i thought it was not true,then i said let me try ,because am used to trying ,i have been trying for two years,till that day GOD wipe my tears,with DR DADA ,He his gifted ,and he is so honest ,so easy to get along with ,so after i contacted him via his email (DRDADASPELLHOME@GMAIL.COM), also whatsApp him on +2348158568638 or(DRDADASPELLHOME@HOTMAIL.COM), so he replied and said my problem is solved that i must stop thinking,so i believed and have faith that i will be cured ,so i purchased the herbal medicine and he sent the herbal medicine to me through courier service ,when i received it ,he told me how to use it ,so i followed exactly the way he said i must use it,he said i will be totally cured after two weeks ,so after two week i went to see our family doctor he tested me and said am negative ,i was so happy i thought i was dreaming ,pls dont ignore this post ,if u think is not real try ,and u will testify just like me ....thanks to DR DADA ,GOD BLESS U YOU CAN CONTACT ME ON MY EMAIL(STAYCE195@GMAIL.COM)

    ReplyDelete
  14. INSTEAD OF TAKING A LOAN, Testimony on how I become rich and famous, I was scammed $850 trying to join illuminati until I meant Prof. Theophilus who make me a member. Join the Great Brotherhood illuminati world-wide United State/UK, distance is not a problem, no matter the country you are from, you are all welcome to join our great brotherhood/ societies. Benefits: 1. You shall be given Citizenship Auditorium in any country of your choice, 2. You will be famous in any career of your choice (like music, sport, acting, business etc), 3. We shall also make you rich and be place on monthly salary, 4. A house and a car in any country of your choice. As a member, no human sacrifice is involved. Email Agent, Prof. Theophilus on: illuminatiworldwideuk@gmail.com or me on sandynateluk@gmail.com

    ReplyDelete